AUSTRALIAN KABUKI SYNDROME ASSOCIATION INC.

 

AIMS OF THE ASSOCIATION

 
 
  • Provide support to all persons with Kabuki Syndrome and their family
  • Provide contact point for families who are affected by the condition
  • Provide a forum for the exchange of information, support, research, legal status, branding, constitution and fund raising
  • Provide collective representation of all States of Australia as one peak bodyAim to provide a yearly national get-together
  • Provide where necessary up to date information on Kabuki Syndrome, enabling education both to parents and allied health care professionals
  • Provide when relevant a National body to be able to consult with Government bodies both federal and StateCollection and provision with consent of a true register of children and young adults with Kabuki Syndrome living in Australia
  • Provide the forum and opportunity for families to express concerns and ideas on all matters effecting families
    and their Kabuki children
  • Aim at providing a quarterly news letter giving up to date information about services, entitlements and keeping Kabuki families in touch

 

 

 

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AUSTRALIAN KABUKI SYNDROME ASSOCIATION INC.2008