AUSTRALIAN KABUKI SYNDROME ASSOCIATION INC.

 

REFERENCE

 
 
 

RESOURCES AND SUPPORT

In an EMERGENCY in AUSTRALIA dial - 000 - for Ambulance – Fire – Police
(Digital Mobile Phone Emergency Service:-  if you are outside your own provider’s GSM network coverage area dial 112 as an alternative to 000. You may not be able to access 112 if you are outside of all network coverage areas.)

SUPPORT FOR HEALTH CONCERNS
Before it’s an emergency call - HEALTH DIRECT1800 022 222 – to speak to a Registered Nurse 24 hours a day, seven days a week.

This service is available in the following States and Territories:
New South Wales, Australian Capital Territory, Tasmania, South Australia, Western Australia and Northern Territory.

For - Victoria – NURSE ON CALL - 1300 606 024
       - Queensland – 13 HEALTH – (13432584)      


This service is a free call from land lines.

 

KABUKI SYNDROME – FACT SHEET
Better Health
www.betterhealth.vic.gov.au

AGSATHE ASSOCIATION OF GENETIC SUPPORT OF AUSTRALIA INC.
www.agsa-geneticsupport.org.au

SMILE FOUNDATION
The SMILE Foundation is a charity set up to support research into diagnosis, treatment and/or cure for rare childhood diseases or conditions and to help afflicted families.
www.smilefoundation.com.au
P: (02) 8986 5395

interchange - Where ability shines - www.interchange.org.au
Suite 6, 75 Ashley St., Braybrook, Victoria 3019
P: 1300 300 436 - email: enquiries@interchange.org.au
Interchange agencies are not-for-profit community organization providing services to enhance the quality of life and well being of people with a disability and their families.

Interchange agencies operate a number of programs throughout Australia -
Victoria: P: 1300 300 436: - email: enquiries@interchange.org.au
New South Wales: P: 02 9789 1348 - email: admin@interchangensw.com.au
South Australia: P: 08 8132 5300 - email: enquiries@interchangesa.org.au
Queensland: P: 07 5564 0655 - email: reception@fsg.org.au
Western Australia: P: 08 9329 9399 - Suite 7, Hulme House, 32 Hulme Court, Myaree. WA 6154


AUSTRALIAN HUMAN RIGHTS COMMISSION

Email:   disabdis@humanrights.gov.au
www.humanrights.gov.au

.
MAJOR HOSPITALS FOR CHILDREN WITHIN AUSTRALIA

QUEENSLAND
Royal Children’s Hospital  Ph. (07) 3636 3777
Cnr. Branston Terrace and Herston Road
HERSTON.  QLD.     4029
www.health.qld.gov/rch

 

NEW SOUTH WALES

Centre for Genetics Education
http://www.genetics.edu.au/

Sydney Children’s Hospital Ph. (02) 9382 1111
High Street
RANDWICK.  N.S.W. 2031  International.   61 2 9382 1111
www.sch.edu.au

The Children’s Hospital at Westmead  Ph. (02) 9845 0000
Locked Bag 4001
WESTMEAD.  N.S.W.  2145

Crn. Hawkesbury Road and Hainsworth Street
Westmead.  SYDNEY
www.chw.edu.au

 

AUSTRALIAN CAPITOL TERRITORY
Canberra Hospital Ph. (02) 6244 2222
Yamba Drive
GARRAN ACT 2605

PO Box 11
WODEN A.C.T 2606

ACT HEALTH
GPO Box 825
CANBERRA CITY. ACT  2601
www.health.act.gov.au

HEALTH DIRECT:  1800 022 222 or (02) 6207 7777 to speak to a Registered Nurse 24 hours a day, seven days a week.

 

VICTORIA
Royal Children’s Hospital Ph. (03) 9689 1577
50 Flemington Road
Parkville
VICTORIA
www.rch.org.au

Better Health
www.betterhealth.vic.gov.au

HEALTH DIRECT: Ph. 1300 606 024

 

TASMANIA
Royal Hobart Hospital
48 Liverpool Street
HOBART   
TASMANIA    7000

GPO Box 1061
HOBART
TASMANIA    7001
www.dhhs.tas.gov.au/hospitals/royal_hobart

 

To contact Disability Services you can call 1300 799 530 statewide for price of local call.

 

SOUTH AUSTRALIA
Child Youth Health
Women’s and Children’s Hospital Ph. (08) 8161 7000
72 King William Road
North Adelaide
SOUTH AUSTRALIA 5006
www.cyh.com.

 

WESTERN AUSTRALIA
Princess Margaret Hospital for Children  Ph. (08) 9340 8222
Robert Road
SUBIACO. WA  6008
www.cahs.health.wa.gov.au

Disability Services Commission
www.disability.wa.gov.au/.

 

NORTHERN TERRITORY
Darwin Hospital  Ph. (080 8999 2400
87 Mitchell Street
Darwin Northern Territory
P.O. Box   40596
CASUARINA. N.T.  0811
www.health.nt.gov.au

HEALTH DIRECT:     Northern Territory:1800 186 026
For 24 Hour Health Advice and Information

Katherine District Hospital Ph. (08) 8973 9211
Gile Street
KATHERINE    N.T.  0852

Alice Springs Hospital. Ph. (08) 951 7990
Gap Road
ALICE SPRINGS N.T. 0870

 

INTERNATIONAL SUPPORT

CANADA
Kabuki Syndrome Network
www.kabukisyndrome.com

 

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AUSTRALIAN KABUKI SYNDROME ASSOCIATION INC.2008